International Rare Disease Day is a perfect day to announce our new campaign with the goals of raising awareness and support for KCNT1 Epilepsy. We stand with our employees, and the community of individuals, families, and caregivers who are dedicated to helping find a cure for this devastating disease.
Let’s join hands, minds, and prayers!
WHAT IS KCNT1 Epilepsy?
KCNT1 Epilepsy is a rare genetic disorder that affects infants and young children. It causes seizures that can be difficult to control and can lead to developmental delays and other health issues. At Arpin Strong, we are committed to helping the KCNT1 Epilepsy Foundation in their efforts to find a cure for KCNT1 Epilepsy through research, education, and advocacy.
We invite you to join us in this important mission by donating to support research efforts or by helping them find volunteers to participate in clinical trials. Every donation and every volunteer helps them get one step closer to finding a cure.
We stand strong behind believing every child deserves a chance at a healthy and happy life. With your help, we can make that a reality. Thank you in advance for your support and willingness to spread the word!
You can help the KCNT1 Epilepsy Foundation in several ways:
You can volunteer for roles such as social media, event planning, and research coordination.
You can also participate in research by signing up for their Family Contact list or enrolling in the KCNT1 Registry.
You can donate funds on Arpin Strong’s website, or assist the Foundation with their fundraising campaigns.
Follow their social media, become a patient advocate/ambassador, contribute photographs, or become a translator.
Visit KCNT1 Epilepsy Foundation’s website for more information and directly support the Foundation and the community.
The mission of the KCNT1 Epilepsy Foundation is to accelerate research and drug development efforts focused on finding a cure for KCNT1-related epilepsy. The KCNT1 Epilepsy Foundation supports the KCNT1 community with educational resources and the latest research information.